The National Cancer Registration Service (NCRS) Eastern Office is one of eight regional cancer registration offices in England, along with the three cancer registries in Wales, Scotland and Northern Ireland. We are a member of the United Kingdom Association of Cancer Registries (UKACR). NCRS East was formerly the Eastern Cancer Registration and Information Service and we cover the East of England which includes the counties of Norfolk, Suffolk, Cambridgeshire, Essex, Bedfordshire and Hertfordshire. Our regional population is approximately 5.5 million. We are co-terminus with the East of England government office (Go-East) and the Eastern Region Public Health Observatory (ERPHO).
NCRS East has become part of Public Health England, an executive agency of the Department of Health.
Public Health England has been established to protect and improve the nation’s health and wellbeing and to reduce inequalities. It will lead on the development of a 21st-century health and wellbeing service, supporting local authorities and the NHS to deliver the greatest possible improvements in public health. It came into being in April 2013. For all corporate information please see www.gov.uk/phe.
In 2009 each of the then regional cancer registries were designated to be the lead for a particular tumour type. NCRS East is the National Brain and CMS Tumour registry and details can be found at www.nbtr.nhs.uk.
NCRS East’s primary role is to collect, process, store and analyse all malignant tumours and some pre-cancerous and non-malignant (benign Brain and CNS tumours only) cancers newly diagnosed in the East of England. We currently hold approximately 1 million records on our database, with some records going back to 1971.
We receive data from multiple sources including hospital PATH, PAS, MDT and CWT systems, Death Cards from the Office of National Statistics (ONS), and data exchanges between the UK Cancer Registries.
Identifiable patient data is never released from the registry without appropriate ethical approval and the registry will never contact individual patients or their relatives. Details of about the benefits of cancer registration are available on the UK Association of Cancer Registries website.
The cancer registries throughout the UK are in a unique position in being able to provide high quality and timely information about cancer. Some trend data can date back 20 or more years. Some of the important uses of cancer registration information include:
- Contributing to important research projects and programmes both throughout the UK and internationally.
- Providing information on cancer incidence, survival and mortality over time.
- Monitoring trends in cancer.
- Supporting national initiatives in cancer such and the NHS Cancer Plan and the Cancer Reform Strategy.
- Auditing activities and outcomes.
NCRS East is based at in Cambridge at Unit C Magog Court, there are also additional registration staff based in Ipswich, Norwich, Colchester, Basildon, Hemel Hempstead, Watford and Southend Hospitals.