NCRS Eastern Office’s analysis team extracts, analyses and interprets regional cancer statistics. Requests for data come from health professionals, researchers, national and regional organisations and the general public. Enquiries vary in their complexity from queries that require a simple extraction from the database to more complicated analyses, which may take several days.
To request information please e-mail the Information and Analysis Team – email@example.com
It would help us to provide the most useful and appropriate data/information to respond to your request if we have some details of:
- Your organisation/ place of work
- Your role in the organisation
- Contact details including a telephone number
- The purpose for which the information will be used
National Cancer Information Service (CIS)
As part of the NHS Cancer Plan, cancer registries were funded to develop a web-based product, the United Kingdom Cancer Information Service (UKCIS). This will increase access through NHSnet to data on cancer incidence, mortality and survival. The data are prepared according to strict criteria to provide comparable data for NHS organisations and geographies across changing health and administrative boundaries. Rollout of UKCIS began in early Summer 2004 and training in the use of the system will be provided. This will complement the tailored analyses undertaken on request by the registries.
You may use UKCIS if you have applied for and received a user name and password (you need to be using a NHSnet computer for this link to work).
Please fill in this request form (Microsoft Word) if you would like to use UKCIS (NHS users only) or there is something you need to know that is not covered here.
Forms for download
The information held by NCRS Eastern Office is strictly confidential. NCRS Eastern Office adhere to a detailed code of practice determined by law and the policy of the United Kingdom Association of Cancer Registries. In line with the Data Protection Act 1998 identifiable data are not released unless at least one of the following conditions are met:
- A patient wishes to look at data about themselves
- A doctor responsible for a patient wishes to examine the patient’s records
- The information is necessary for audit or the protection of public health
- For research purposes, in which case research ethics committee approval is essential. In this case there are further conditions that apply
These requests for patient identifiable data require discussion with the Registry Analysis Team and the completion of a form requesting patient identifiable data which must be signed by the requester and the Registry Caldicott Guardian. These forms are available for download here, but please ensure you discuss requests with the Registry Analysis Team first – firstname.lastname@example.org – please see contact guidelines as above.
UKACR Confidentialty Form (MS Word doc)
Disclosive Data Request Form (MS Word doc)